Bethesda

Roger went into Bethesda Palliative Care yesterday for a week. I received a phone call from them as I was in the hospital foyer asking if we were coming! Obviously they have no idea what it takes to get my beloved ready each morning. He was looking his best, I felt very tired and exhausted and I wish I could have the bed and view he has for a week! But his circumstances are just horrible, so any pleasure he can get, I don't want to deny him (coffee and chocolate mint slice for breakfast!!!).

Roger is all settled into Room 5 in a 'Room with a View" (just for Jocelyn and Glenda's benefit). He has ladies fussing all over him and I think he is going to be very happy there and maybe won't want to come home!! I will take a few photo's when next I visit Roger and post them for you to see how happy he is. He has asked me to bring the binoculars for him to use.

I did not realize the tube feeding routine would be so rigorous with feeds occurring at 6, 10, 14, 18 and 22 throughout the day. But I have been told that this will settle down. It's like feeding a baby all over again. Cherylyn our Care Adviser from MND Society has reassured me the feeding will not be as regular and I will be able to feed through a syringe eventually.

I had a good nights sleep last night. It is good to have some time for myself and I'm not doing too much at all.

I continue to work at Star Settlements / ijrproperty just down the road and I am really enjoying the work and the lovely environment. I work 24 hours/week and hope to continue for as long as possible.